After having relatively low to no waiting around lately , the thought occurred to me that I can still Make some time to write a bit.
So I'll share my favorite day and one of the adventures and challenges I encountered on my vacation in November.
My husband Peter and I celebrated our 10th wedding anniversary in Puerto Vallarta the first week of November. Fabulous warm weather, beautiful resort, super nice and accommodating people, and great foods- just what we wanted in our vacation. The pool was refreshing without being cold, and the ocean seemed great for all those who were swimming there. We made friends with a few other guest's and enjoyed laying out to work on our tans. There were many organized activities, and one that we decided to join was a trip to town for dancing in the evening. We arrived with the other resort folks and after locating seats, we went to the dance floor. Was it ever fun to have a group of fun loving, dancing however we want to people filling my evening with music and eye candy and smiles. After a margaritas filled day we really got moving with the crowd! All the music was from the US, so my karaoke sing along dream was also fulfilled.
Well eventually I used the restroom, and unfortunately took off my cross body purse, and you gessed it, left it hanging there, unbeknownst to me at the time, of course.
After dancing for what felt like a couple more hours, I returned to the restroom, had a brief moment of recognition and realized that I did not have my purse. Mild panic caused me to return to my original stall, and all the other stalls, to check for the missing article. Darn, no luck, so I also asked the restroom attendant, and she knew nothing either, double darn. Now at this point the only other thing to do is report the missing purse, and hope someone turns it in eventually.
So I returned to our table after reporting the lost bolsa to one of the many security guards, with my limited spanish, and my deep seated knowledge that I will probably never see that purse again. Funny how losing something instantly had me taking an inventory of contents, and in that process, realizing how fortunate I was for locking most important things in the room safe at the hotel!
So did we go home immediately? No way I was giving up a night of fun because of a mishap! After a few more dances, we did leave for the hotel, and Peter gallantly paid for everything the rest of the evening, too.
Upon our return, I found that I had not taken my phone- hooray! And after checking the safe, my passport was still there, so all in all, a terrible inconvenience to cancel cards, but not nearly as horrible as getting through the first moments of loss!
My lesson learned was to NOT take off a purse, or better yet, not take one out dancing, and let my husband pamper me instead!
Thursday, December 10, 2015
Sunday, October 4, 2015
Never let someone be waiting for you
If someone is doing you a favor, make sure they are not waiting for you.
Wise words from my father, and I am sure to hear them in my head whenever I have the opportunity to meet someone, and especially if I have to wait. I will say that my experiences through this cancer journey has been a test of patience, an exercise of getting things accomplished while I wait, and a remarkable attestation that there are a Lot of very caring and considerate people in the health care community. Well worth waiting for, I have to say.
Often times I am updated on how much longer I may be expected to wait, and have been fortunate to have warm greetings and kind words upon my arrival to the Many appointments.
I am thankful that I have had my many questions answered in detail, and any additional thoughts for my personal situation considered in my care. Who would have guessed that such an unpleasant turn of events could actually make me thankful? I feel lucky to have met the fun and generous groups of nurses who help to make each person feel special, and continue to care for people who are in need of not only the medicine, but the extra dose of compassion to see them through.
So as I wait today, I feel lucky to have a chance to share what may be a different perspective, with all of you, too! I'm glad I had the chance to wait for that!
Happy thoughts!
Wise words from my father, and I am sure to hear them in my head whenever I have the opportunity to meet someone, and especially if I have to wait. I will say that my experiences through this cancer journey has been a test of patience, an exercise of getting things accomplished while I wait, and a remarkable attestation that there are a Lot of very caring and considerate people in the health care community. Well worth waiting for, I have to say.
Often times I am updated on how much longer I may be expected to wait, and have been fortunate to have warm greetings and kind words upon my arrival to the Many appointments.
I am thankful that I have had my many questions answered in detail, and any additional thoughts for my personal situation considered in my care. Who would have guessed that such an unpleasant turn of events could actually make me thankful? I feel lucky to have met the fun and generous groups of nurses who help to make each person feel special, and continue to care for people who are in need of not only the medicine, but the extra dose of compassion to see them through.
So as I wait today, I feel lucky to have a chance to share what may be a different perspective, with all of you, too! I'm glad I had the chance to wait for that!
Happy thoughts!
Monday, September 14, 2015
Port Removal celebration
After I was diagnised, after my surgery, before the chemo, I had a big button placed under the skin with tube into the veins- port placement. Now most people get this placed discretely out of sight and it doesn't bother their routine much and one gets used to having it. I was an exceptiion, and needed mine place higher on the chest, right about where the seat belt lays across your chest when you buckle up to drive. I had gotten used to the irritation and dreamed of the day I could have it removed. Thankfully that day was today! (9/10)
Now I remember them telling me when they installed it that they put a little suture in to hold one part in place, and I relayed that tidbit during my surgery prep talk. I was told they usually don't do that and probably what I felt was just a part of the device. Luckily when the expert un-installer man got tugging on the tubing, it dawned on him that there was a suture there and he clipped it, or whatever he did after tugging a few not so gentle times- gotta love an experienced man when it comes to things like tugging, especially when he kniw 's when to stop as I protest with a friendly hey Hey HEY!
I will say the area was well numbed and I didn't have to See any of the action, so that was great, too. The procedure was quick and after icing and taking a pain pill, I can put another checkmark on my list of things to do with this dreaded disease.
To all of you who may be going through similar unpleasantness, I say the best feeling is when it's over! Take good care of yourself and I'll see you soon!
Now I remember them telling me when they installed it that they put a little suture in to hold one part in place, and I relayed that tidbit during my surgery prep talk. I was told they usually don't do that and probably what I felt was just a part of the device. Luckily when the expert un-installer man got tugging on the tubing, it dawned on him that there was a suture there and he clipped it, or whatever he did after tugging a few not so gentle times- gotta love an experienced man when it comes to things like tugging, especially when he kniw 's when to stop as I protest with a friendly hey Hey HEY!
I will say the area was well numbed and I didn't have to See any of the action, so that was great, too. The procedure was quick and after icing and taking a pain pill, I can put another checkmark on my list of things to do with this dreaded disease.
To all of you who may be going through similar unpleasantness, I say the best feeling is when it's over! Take good care of yourself and I'll see you soon!
Thursday, September 10, 2015
More appointments=more information
Have you had your share of appointments this year? I am one of those folks who rarely has to do things that require an appointment time. Well all that changed with my diagnosis last November. I remember trying to take advantage of the holiday season to find openings for the multitude of tests that were required to look closely in my entire body to see if my cancer had spread farther than my breast and the underarm lymph nodes that had already been found. I am very fortunate to work for a company, and to hold a position that has really allowed me to take advantage of available time slots. It seems as though every Dr. has a full schedule and it is hard enough to figure out which dr to get referred to, to have whatever is needed authorized, and then shedule the appointment . Then we have to Remember the appointment and organize every other part of our life around it. If the first time slot is not convenient, sometimes it is 2weeks later until there is another equally inopportune time available. One has to see some humor in that part!
Well, for me that unpredictability can be frustrating, but I have been adapting. With my trusty phone to keep you all nearby, it is much easier to wait. I understand that if they are running late it must be that someone else needed more help or an additional bit of caring on a particular day. I also find that coming into an appointment with a Great attitude and rembering to thank every person who I come into contact with can also help my future appointments go smoothly and they usually return my smile, which always makes me feel even better about aaallllll the questions I ask! I encourage all of you to arrive prepared for each appointment too , as I have found that most information is available if we ask for it.
Time for this Dr to check my toenails again, so I'm going to ask if there are supplements to make them grow faster- little question, but may lead to a discussion on nutrition - my favorite quiz of all!
Until next time- take great care of yourself and I hope you ask some
Well, for me that unpredictability can be frustrating, but I have been adapting. With my trusty phone to keep you all nearby, it is much easier to wait. I understand that if they are running late it must be that someone else needed more help or an additional bit of caring on a particular day. I also find that coming into an appointment with a Great attitude and rembering to thank every person who I come into contact with can also help my future appointments go smoothly and they usually return my smile, which always makes me feel even better about aaallllll the questions I ask! I encourage all of you to arrive prepared for each appointment too , as I have found that most information is available if we ask for it.
Time for this Dr to check my toenails again, so I'm going to ask if there are supplements to make them grow faster- little question, but may lead to a discussion on nutrition - my favorite quiz of all!
Until next time- take great care of yourself and I hope you ask some
Wednesday, August 26, 2015
First Tattoos
Today I had my scan for my radiation plan. Super nice technicians and nurses and the Doctor is amazing too. As I was positioned on the scanning table, I kept wondering when they would administer the tattoos, how many will there be, and most of all, will they be very noticeable? Well I really didn't have so much to worry about as they are very small skin pricks, and pink! She used a black light to give a visual check so I'll have to find a low cut top and a black light dance floor to really show off my new tats! So in other words all that energy wondering about if it would hurt, etc was unwarranted.
I have begun my radiation treatments last Monday, which puts me finishing about the first week of October. For that I am very excited as it will mark the end of another chapter in this old breast cancer story!
Saturday, August 8, 2015
Moving Forward
Moving forward
Ever think about how that statement can mean so much? In some ways it reflects the mere passing of time. Sometimes it means getting through another day, and occasionally it means taking giant leaps into the unknown.
As I continue in my journey, my year or so in a fight against breast cancer, I am propelled into another of the 'unknown' category. I will begin the radiation therapy process next week. In many ways the next 7weeks seem overwhelming, and in other ways, they seem like not much time at all, compared to my last 7 months undergoing the oh so inconvenient 'chemo' treatments. It is hard to imagine my body having gone through so much already. The next part is hardly even daunting.
I have adopted eating a yeast free diet, and am again walking 2 miles a day, plus any other exercise form I can add to that base. Going back into the office to work this past week was a big change to my routine, but was one of the key ingredients to getting my motivation back, too. I guess it is one leap towards returning to my former self, though that has changed too, it seems. I need to think a bit more about who I want to become, as so many things have changed from that person I used to be. I hope to keep the cancer from coming back, so if that means eating differently and exercising more, then that's what I'll embrace!
The exciting things that have been happening are worth the efforts. I have been losing a few pounds and keeping them off, and the exercise has given me more energy too, of course.
My hair is starting to come back which is great news. I think so far it will be a lovely platinum color, which may or may not stay, though I kinda hope it does. I'd rather skip the former mostly grey coloring, but am happy with whatever I get! I have enjoyed my time not having to shave my legs, but actually look forward to having my eyebrows back some day! Who knew it was so hard to draw those on every day, and get them even, in an attempt to create a Look.
I have lately been wearing my short haircut wig and find that it is pretty comfortable, keeping me warm in all the office air conditioning- who knew! It takes me very little time in the mornings to whip through the shower, dress and pop my hair on, so it is a bit attractive to keep with that routine, even as my hair slowly returns. I miss my pony tail, but feel like at 53 I can perhaps stick with a shorter hairdo, and pamper myself with regular salon visits in the future. I have seen some pretty stylish hairdos while I wait for my turn to get a cut, and it won't be more than a few more months, till I can style something again.
Time seems to be moving quickly with all that keeps me busy, and I understand how folks older than me say they are amazed at how the years go by quickly. I attribute that to the many wonderful and interesting things that are filling my days, and how just having my family and friends actively involved, I have so many cherished moments. Thanks to all of you for following along with me while I wait for my next adventures!
If you have a chance, add a line or two in response to let me know how your time is passing, and what makes a special moment for you! Enjoy today!
Ever think about how that statement can mean so much? In some ways it reflects the mere passing of time. Sometimes it means getting through another day, and occasionally it means taking giant leaps into the unknown.
As I continue in my journey, my year or so in a fight against breast cancer, I am propelled into another of the 'unknown' category. I will begin the radiation therapy process next week. In many ways the next 7weeks seem overwhelming, and in other ways, they seem like not much time at all, compared to my last 7 months undergoing the oh so inconvenient 'chemo' treatments. It is hard to imagine my body having gone through so much already. The next part is hardly even daunting.
I have adopted eating a yeast free diet, and am again walking 2 miles a day, plus any other exercise form I can add to that base. Going back into the office to work this past week was a big change to my routine, but was one of the key ingredients to getting my motivation back, too. I guess it is one leap towards returning to my former self, though that has changed too, it seems. I need to think a bit more about who I want to become, as so many things have changed from that person I used to be. I hope to keep the cancer from coming back, so if that means eating differently and exercising more, then that's what I'll embrace!
The exciting things that have been happening are worth the efforts. I have been losing a few pounds and keeping them off, and the exercise has given me more energy too, of course.
My hair is starting to come back which is great news. I think so far it will be a lovely platinum color, which may or may not stay, though I kinda hope it does. I'd rather skip the former mostly grey coloring, but am happy with whatever I get! I have enjoyed my time not having to shave my legs, but actually look forward to having my eyebrows back some day! Who knew it was so hard to draw those on every day, and get them even, in an attempt to create a Look.
I have lately been wearing my short haircut wig and find that it is pretty comfortable, keeping me warm in all the office air conditioning- who knew! It takes me very little time in the mornings to whip through the shower, dress and pop my hair on, so it is a bit attractive to keep with that routine, even as my hair slowly returns. I miss my pony tail, but feel like at 53 I can perhaps stick with a shorter hairdo, and pamper myself with regular salon visits in the future. I have seen some pretty stylish hairdos while I wait for my turn to get a cut, and it won't be more than a few more months, till I can style something again.
Time seems to be moving quickly with all that keeps me busy, and I understand how folks older than me say they are amazed at how the years go by quickly. I attribute that to the many wonderful and interesting things that are filling my days, and how just having my family and friends actively involved, I have so many cherished moments. Thanks to all of you for following along with me while I wait for my next adventures!
If you have a chance, add a line or two in response to let me know how your time is passing, and what makes a special moment for you! Enjoy today!
Friday, July 17, 2015
Last chemotherapy treatment day! Hoooraaaayyyy!
Hello again friends!
Today I'm having my last chemo treatment, and I am so looking forward to so many of the normal things in life! Well I have a month off before I start my radiation, and should be feeling much better in a couple weeks. At least the fuzz on my head will be starting to turn into short hairs, and I will be excited to see just how much glitter will adorn my head with this new growth! I have acquired a huge assortment of scarves for turbans and even have a couple wigs to carry me through till the fall. I imagine the short cut will be easy to manage and I aspire to the look of Carol, I the walking dead by Christmas , but whatever I get will be good, and the Sinead O'Connor look will do for a celebration vacation to warm weather!
Today I'm having my last chemo treatment, and I am so looking forward to so many of the normal things in life! Well I have a month off before I start my radiation, and should be feeling much better in a couple weeks. At least the fuzz on my head will be starting to turn into short hairs, and I will be excited to see just how much glitter will adorn my head with this new growth! I have acquired a huge assortment of scarves for turbans and even have a couple wigs to carry me through till the fall. I imagine the short cut will be easy to manage and I aspire to the look of Carol, I the walking dead by Christmas , but whatever I get will be good, and the Sinead O'Connor look will do for a celebration vacation to warm weather!
The challenging part of having no hair is trying to feel somewhat normal in appearance. No matter how cleverly I tie my scarf it always feels like, ugh, is someone going to ask me if I have cancer, Again?!
What I find is that when I go out to do my grocery shopping, I don't really want people to talk to me about my illness, and I would be happy if they conversed on apple variety, price of tomatoes, or Anything but my diagnosis. I hope that when I see a fellow survivor, I remember what it was like and talk to them about something that they might enjoy talking about, giving them some privacy and maybe even respect or space they need for their time away from home. If they seem like they need support, I will mention I too am a survivor, and that may ease their mind. I usually direct them to cancer.org as a super resource, because I have had good luck with their connections of a free wig, the look goog, feel better program and they can even pair you with a fellow survivor that has had your same diagnosis, for talking through the unknowns.
Since I was diagnosed, I find there are lots of us, we are strong people, and fighters, all! Makes me feel great to be among such a great group of individuals, and I hope I can help someone often. Only God know why we are in this, but we all grow in this together, which makes us even stronger.
Prayers are always welcome wih chemo!
I will say that I am fortunate to be an outgoing personality, which helps me to initiate conversations with people I may meet while we are out and about. I encourage all of you to take a leap and say hi to someone you don't know, strike up a short conversation and get to know what makes the other unique- you may find a new friend, or you may just help someone through a challenging day! My thanks go out to all of you readers. I enjoy "talking" to you often, and will do my best to keep up our conversations- I'm sure I will be waiting for personality, which helps me to initiate conversations with people I may meet while we are out and about. I encourage all of you to take a leap and say hi to someone you don't know, strike up a short conversation and get to know what makes the other unique- you may find a new friend, or you may just help someone through a challenging day! My thanks go out to all of you readers. I enjoy "talking" to you often, and will do my best to keep up our conversations- I'm sure I will be waiting for something!
Friday, July 10, 2015
Fridays!
Do you look forward to Friday? I have always looked to the weekend for grounding, getting together with friends, and even catching up on housework! For some reason it always seems like those things are hard to squeeze in during the week, and all are good reasons not to stay in bed too late on Saturday or Sunday.
I find that early mornings are some if the most precious of the day, and I really hate to miss the birds singing, or even watching the sprinklers do their thing. I find I so relaxing to have no immediate time requirements.
As I shut the computer down when I finished working today, it dawned on me that today is Friday! And on my way to my next to last treatment, That dawned on me too, Double Yippee! And to top that off, my garden is looking good! Fabulous blueberries and vegetables are growing, weeds are almost under control, and it is summertime! What a great time to be alive! I truly feel blessed and very thankful to have the support of family and friends and great nurses and doctors for all the not so fun things going on right now.
For the most part, the little things are the best part of life, and we should celebrate every day- especially Friday!
I find that early mornings are some if the most precious of the day, and I really hate to miss the birds singing, or even watching the sprinklers do their thing. I find I so relaxing to have no immediate time requirements.
As I shut the computer down when I finished working today, it dawned on me that today is Friday! And on my way to my next to last treatment, That dawned on me too, Double Yippee! And to top that off, my garden is looking good! Fabulous blueberries and vegetables are growing, weeds are almost under control, and it is summertime! What a great time to be alive! I truly feel blessed and very thankful to have the support of family and friends and great nurses and doctors for all the not so fun things going on right now.
For the most part, the little things are the best part of life, and we should celebrate every day- especially Friday!
Thursday, July 2, 2015
Waiting for the weekend to begin
Waiting for the weekend to begin
I woke up today to the sun shining through my window, and had 2 whole minutes before the alarm was to go off. As I re-shut my eyes to enjoy every second of rejuvenation, I had a chance to be thankful for another beautiful day! As my mind began to focus I started planning my day, and my 3 day weekend!
Do you wake up with your mind racing through all that needs to be done for the day? Mine always has I think, and it makes me revv up from the time I open my eyes. Shower, coffee, dog, work- that is my morning routine. As I savor my first cup, I lay out the day in my head and sometimes make my lists, if there are just too many things to think about swirling around in there at once. I make lists to be able to prioritize all the things I want to either start or finish, and grocery lists, of course. What a great feeling to be able to mark something off and feel that burst of accomplishment to fuel me towards the next item on the list.
Along that line of crossing things off is that today is the 10th of the12 treatments in this round of chemo! I am hoping my visit with the Dr in a few minutes provides good results and I am able to continue without a break. I mean I am So Close to moving on to a recovery break, then the final step, radiation. I feel confident that I will Win this race. Not that the next part is something to really look forward to, but the forward progress is!
The nurses, as always, are cheery and very welcoming when I arrive, and fit me in almost immediately to get my labs drawn. And now I wait for my appointment with the Dr.
This waiting room could use a little festive feel right about now, but I hesitate to intrude on one couple as she does not appear to feel well, or maybe she is just opting for a quiet moment with her eyes closed. Her husband is by her side and though the support is admirable, some woman act differently around their spouse- maybe we all mirror the company we keep? I always hope others will mirror my optimism, or if I appear in need of a little boost, they can offer some energy to me! After all, we are all on this earth together, so why not do whatever we can to make our days bright and our outlook sunny!
I hope I have given you a ray of sunshine and some interesting topics to ponder- make it a fabulous day!
I woke up today to the sun shining through my window, and had 2 whole minutes before the alarm was to go off. As I re-shut my eyes to enjoy every second of rejuvenation, I had a chance to be thankful for another beautiful day! As my mind began to focus I started planning my day, and my 3 day weekend!
Do you wake up with your mind racing through all that needs to be done for the day? Mine always has I think, and it makes me revv up from the time I open my eyes. Shower, coffee, dog, work- that is my morning routine. As I savor my first cup, I lay out the day in my head and sometimes make my lists, if there are just too many things to think about swirling around in there at once. I make lists to be able to prioritize all the things I want to either start or finish, and grocery lists, of course. What a great feeling to be able to mark something off and feel that burst of accomplishment to fuel me towards the next item on the list.
Along that line of crossing things off is that today is the 10th of the12 treatments in this round of chemo! I am hoping my visit with the Dr in a few minutes provides good results and I am able to continue without a break. I mean I am So Close to moving on to a recovery break, then the final step, radiation. I feel confident that I will Win this race. Not that the next part is something to really look forward to, but the forward progress is!
The nurses, as always, are cheery and very welcoming when I arrive, and fit me in almost immediately to get my labs drawn. And now I wait for my appointment with the Dr.
This waiting room could use a little festive feel right about now, but I hesitate to intrude on one couple as she does not appear to feel well, or maybe she is just opting for a quiet moment with her eyes closed. Her husband is by her side and though the support is admirable, some woman act differently around their spouse- maybe we all mirror the company we keep? I always hope others will mirror my optimism, or if I appear in need of a little boost, they can offer some energy to me! After all, we are all on this earth together, so why not do whatever we can to make our days bright and our outlook sunny!
I hope I have given you a ray of sunshine and some interesting topics to ponder- make it a fabulous day!
Whoopsie-Last weeks impression
Interesting people we meet
How fun it is to initiate a conversation and find a friend. As I waited to be called back to treatment I noticed a woman reading a hardcover book. I merely asked her if it was good and our time started to pass very quickly. Have you ever noticed how much more pleasant waiting can be when you have an interesting topic and someone to share it with? I can tell you that I rarely mind waiting if I am in good company!
My new friend was also a member of a book club, and to my delight, lives near to me, too. We were aw to be "seated" together for our respective treatments after kidding the nurse about how we wanted to visit longer . My infusion routine was much different than hers, so we talked about our diagnoses and also about nutrition , gardening, spouses, local places we like to frequent, touched on grandchildren and generally lifted each other up with our time together.
So we never know how waiting for something may provide a hidden benefit, or in my case a new friend!
How fun it is to initiate a conversation and find a friend. As I waited to be called back to treatment I noticed a woman reading a hardcover book. I merely asked her if it was good and our time started to pass very quickly. Have you ever noticed how much more pleasant waiting can be when you have an interesting topic and someone to share it with? I can tell you that I rarely mind waiting if I am in good company!
My new friend was also a member of a book club, and to my delight, lives near to me, too. We were aw to be "seated" together for our respective treatments after kidding the nurse about how we wanted to visit longer . My infusion routine was much different than hers, so we talked about our diagnoses and also about nutrition , gardening, spouses, local places we like to frequent, touched on grandchildren and generally lifted each other up with our time together.
So we never know how waiting for something may provide a hidden benefit, or in my case a new friend!
Friday, June 19, 2015
Look Good, Feel Great!
I signed up for a class today through the ACS, called Look Good Feel Better, and it got me thinking about other ways that we refer to this scenario. Dress for success, plan to succeed, and especially the feeling we get when someone says "You look great today!" I know this can make Me feel good, even if I'm not having such a good day. Somehow if someone else believes in us with encouragement and a kind word, we really do get some warm feeling and a little boost! Some people have a hard time accepting a compliment, and I'll admit I had to practice saying Thank you, rather than denying their words or otherwise negating that feeling they gave me. I have found that when I intentionally look my best it is easier to be ok with the compliments, or even acknowledge my own feeling that Yes, I do look good today- on purpose! How uplifting it is, and I believe we really can feel better, or even Great!
These days we can all use a little help in the feeling good area. With many of us bogged down and/or stressed out with juggling work, families and our own activities, it sure helps to receive a compliment or a kind word from anyone!
With that, I would like to ask all of you who read my blog to give lots of compliments, to anyone you see. It takes practice to notice some small detail about each person around us, and even more practice to voice those kind words to people we don't know. We all have an opportunity to brighten someone's day and by doing so We also feel better!
Thanks for stopping by to visit while I waited for my treatment!
These days we can all use a little help in the feeling good area. With many of us bogged down and/or stressed out with juggling work, families and our own activities, it sure helps to receive a compliment or a kind word from anyone!
With that, I would like to ask all of you who read my blog to give lots of compliments, to anyone you see. It takes practice to notice some small detail about each person around us, and even more practice to voice those kind words to people we don't know. We all have an opportunity to brighten someone's day and by doing so We also feel better!
Thanks for stopping by to visit while I waited for my treatment!
Friday, June 12, 2015
Moving On
Today's treatment included a visit with my oncologist. We talked about my latest side effects, and then she let me know she was leaving Washington. Wah waH wah..... Our next visit would be our last. She is moving her family to Florida as the weather is more like her native, India.
We then chatted a bit about warm weather areas around the country and our sometimes differing perspectives of each area. She spoke of her parents, and how they visit her family for extendedperiods which moved us into some generational differences. As a late "boomer" I guessed her age in the 30s. She agreed and we talked about how my age people stay more often in the same place, job, etc. my observation was that people of her generation want to be moving at least every 5 years and get restless. She had not realized that it was noticeable, yet agreed, adding that she and especially her husband are always wanting more. She explained that in Washington they felt they "have it all", but wait, they didn't have sunshine year round! Hence the move to Florida, where it may feel more like home for her parents when they come to visit. Well, our time was up, of course I invited myself to a future visit ;-) I mean why wouldn't she want a former patient to visit her and become a part of her circle of wealthy doctor folks, right? We all enjoy making connections and hope that she just might think of that one patient who she helped through cancer treatments, and someday remember that she made a difference by taking a few minutes to chat.
I hope you have an opportunity to chat with somebody soon. We all can make a difference with a funny story, or share some knowledge, or just to listen to a fellow human being. We are on this earth together so let's make all if our lives richer before one of us moves on.
Friday, June 5, 2015
Cute Summer Attitudes
What a beautiful day today!
I had lots of work to do for my job, so the day went quickly before my treatment. I logged of the computer, took my antihistamine and applied my lidocaine cream and rushed to my appt. I found a close parking spot nearby- Score! It was a short walk to the center and I felt wonderful in the sun, wearing sandals and a cute summery outfit to make my day fun!
Seems like the summer season has begun as the "check in" lady was out- back to the front desk I went, but I was not the only one- there was a kind woman ahead of me, too, so as we went to the alternate location, I again encouraged her to go ahead of me to check in. I mean she was So Sweet! And I was able to have exactly the right amount of time to process a forgotten payment fill out some forms and answer when they called me back- whew!
I was able to get started almost right away today, and it did not seem as busy as usual. Funny how it still takes time between punching the port and actually administering the drug- so I am blogging as I wait! I'll have to find a nice way to inquire about if there is a waiting protocol toake it less stressful on the body. Oh I just heard my gal say she can hang me- Very exciting!
The nurses are in a visiting kind of mood today, or maybe my super cute outfit is making everyone want to be around me, and sharing stories? The thing I like is that they do a great job of making all the patients feel comfortable, and relaxed while we are being infused. I know it must sound weird, but I Do sort if look forward to my treatments so I can catch up in the shared information/stories.
I see that when I and the nurses are chattering away the other patients may just feel a bit better too. I remember my dad having the gift of mood lightening where ever he went and I can only hope to attain his expertise as I have more experiences in my life. If I can brighten a few outlooks on my way through my days, I feel fulfilled, too. I have found that battling cancer is something that most of us will have a connection to through a friend or family member, or our own diagnosis, and with positive experiences shared it may just make someone else feel better too. Hooking up now, so I'll talk to you again next week!
I had lots of work to do for my job, so the day went quickly before my treatment. I logged of the computer, took my antihistamine and applied my lidocaine cream and rushed to my appt. I found a close parking spot nearby- Score! It was a short walk to the center and I felt wonderful in the sun, wearing sandals and a cute summery outfit to make my day fun!
Seems like the summer season has begun as the "check in" lady was out- back to the front desk I went, but I was not the only one- there was a kind woman ahead of me, too, so as we went to the alternate location, I again encouraged her to go ahead of me to check in. I mean she was So Sweet! And I was able to have exactly the right amount of time to process a forgotten payment fill out some forms and answer when they called me back- whew!
I was able to get started almost right away today, and it did not seem as busy as usual. Funny how it still takes time between punching the port and actually administering the drug- so I am blogging as I wait! I'll have to find a nice way to inquire about if there is a waiting protocol toake it less stressful on the body. Oh I just heard my gal say she can hang me- Very exciting!
The nurses are in a visiting kind of mood today, or maybe my super cute outfit is making everyone want to be around me, and sharing stories? The thing I like is that they do a great job of making all the patients feel comfortable, and relaxed while we are being infused. I know it must sound weird, but I Do sort if look forward to my treatments so I can catch up in the shared information/stories.
I see that when I and the nurses are chattering away the other patients may just feel a bit better too. I remember my dad having the gift of mood lightening where ever he went and I can only hope to attain his expertise as I have more experiences in my life. If I can brighten a few outlooks on my way through my days, I feel fulfilled, too. I have found that battling cancer is something that most of us will have a connection to through a friend or family member, or our own diagnosis, and with positive experiences shared it may just make someone else feel better too. Hooking up now, so I'll talk to you again next week!
Friday, May 29, 2015
Live for today
I have noticed these last few months that I am more thankful for all the little things, every day. Until the possibility of not being able to do things, I sort of took for granted some little things in my life. Exercising with my friends at work, running the roto tiller and working hard in the garden, traveling to touristy spots, going to the swap meet and weaving through the crowds for deals. Yes all of those things have been put on hold, and I may not get to ever run the machinery again, but I am still hopeful.
Now I garden lightly, for short amounts if time but really enjoy that feeling of accomplishment as I eliminate weeds and help the plants grow. Lots of times I take breaks after a few short minutes. With this chemo, the sensitivity to sunlight really seems to drain me. But, I return after rehydrating, and do a little more, then call it good enough for the day. The good part about staying home a lot is that I am home to do more of things that have been occasionally neglected in past years! I have been able to make a few quilts, organize the seeing room, cook more, and take some online classes the through the library.
My parents taught us that there is Always a silver lining in whatever comes our way, we just have to look for it. On to that I would add that we should do things whenever we have a chance and not put things off for another day. We cannot predict if tomorrow might be filled with a new set of opportunities, so live for today!
Friday, May 22, 2015
The Art of Conversation
What a great day for random conversations while I wait. So many times we sit in the waiting room with nothing to do, and we know that the other people also are not occupied, and often seem restless. Conversation can help the time pass quickly, alleviate stress, and improve our mood. Oh sometimes we see our fellow waiters entertaining themselves with a book or a phone, but I found many conversations today that I could join in on.
The first one was with two gentleman who were talking about insurance, copayments, Medicare coverage, etc- well I like that topic, so I joined in with anything I had to share. After one man left for his treatment, I continued a bit more with the other, finding out about radiation copayments- handy information with my next step in this journey as radiation therapy. He and his wife come from Port Orchard for her treatment, but were able to do the radiation therapy in Gig Harbor. I felt good that I had spent time getting to know something about a fellow struggler.
The next conversation topic I had was with a couple who come from Ocean Shores to treat. We spoke of it being a long unpredictable drive to Tacoma from there. Then I shared how much I enjoy visiting that town, and how it seems like a warm little community. He shared the news of a whale which was recently beached there, and also news of the jellyfish that came in swarms ending up beached and rotting( eww). We spoke of the wind and kite flying and he shared how nice it was when their kids and grand kids come to visit and how they like to build bonfires on the beach. I then heard the mans spirit lift as he recalled a beautiful day last February that brought many visitors to enjoy the unusually pleasant weather. And then they called him for treatment. Later I had another chance to talk with this man, asking how long they had been living in OS. The instant comfort he must've felt then allowed us the share our personal stories with each other, and learned his diagnosis was pancreatic cancer and had not been expected to live this long. We talked about how we will try/ do whatever we can to increase our chances of survival, how there is new treatment available every day, and how we all must appreciate each day we have on earth, and how grateful we are for days when we feel great, like today! This man could be an inspiration to us all! I have found many cancer survivors who demonstrate a living example of amazing strength and determination. Most are very willing to share their stories in an effort to help someone else through their journey.
I realized today that sometimes random conversations are not only informative, but rewarding in ways we may not anticipate. So next time you are sitting in a waiting room with others, remember it is ok to strike up a conversation, because you may have information to share with the others in the room. We often have free time while we wait, and conversation is an art form that is most rewarding when practiced often.
The first one was with two gentleman who were talking about insurance, copayments, Medicare coverage, etc- well I like that topic, so I joined in with anything I had to share. After one man left for his treatment, I continued a bit more with the other, finding out about radiation copayments- handy information with my next step in this journey as radiation therapy. He and his wife come from Port Orchard for her treatment, but were able to do the radiation therapy in Gig Harbor. I felt good that I had spent time getting to know something about a fellow struggler.
The next conversation topic I had was with a couple who come from Ocean Shores to treat. We spoke of it being a long unpredictable drive to Tacoma from there. Then I shared how much I enjoy visiting that town, and how it seems like a warm little community. He shared the news of a whale which was recently beached there, and also news of the jellyfish that came in swarms ending up beached and rotting( eww). We spoke of the wind and kite flying and he shared how nice it was when their kids and grand kids come to visit and how they like to build bonfires on the beach. I then heard the mans spirit lift as he recalled a beautiful day last February that brought many visitors to enjoy the unusually pleasant weather. And then they called him for treatment. Later I had another chance to talk with this man, asking how long they had been living in OS. The instant comfort he must've felt then allowed us the share our personal stories with each other, and learned his diagnosis was pancreatic cancer and had not been expected to live this long. We talked about how we will try/ do whatever we can to increase our chances of survival, how there is new treatment available every day, and how we all must appreciate each day we have on earth, and how grateful we are for days when we feel great, like today! This man could be an inspiration to us all! I have found many cancer survivors who demonstrate a living example of amazing strength and determination. Most are very willing to share their stories in an effort to help someone else through their journey.
I realized today that sometimes random conversations are not only informative, but rewarding in ways we may not anticipate. So next time you are sitting in a waiting room with others, remember it is ok to strike up a conversation, because you may have information to share with the others in the room. We often have free time while we wait, and conversation is an art form that is most rewarding when practiced often.
Friday, May 15, 2015
Waiting and reminiscing
Sorry for not posting last week- too many distractions I guess!
So here is how it went for me.....
Forgot I needed to pick up a script on my way in and to take a pill an hour before I arrived for treatment so I guess it is my fault for the delays. No complaints as I am having a nice visit with my mom and spending quality time for our Mother's Day weekend.
Makes me think of past ways we celebrated, and which might be my most memorable. Oh it has to be the time we took all our dogs to the dog park and had a picnic. How well behaved they all were, and how proud we were of our "kids" as they romped with the others in the park. Since they were my only grandchildren at that time, it was so special for all of us.
Also makes me cherish memories of spending the day with my sister, as her birthday often fell on Mother's Day - oh how we would laugh and find something special to do to mark the occasion.
So no matter who you spend the day with, we can make a precious memory just by being together.
Have a wonderful weekend!
So here is how it went for me.....
Forgot I needed to pick up a script on my way in and to take a pill an hour before I arrived for treatment so I guess it is my fault for the delays. No complaints as I am having a nice visit with my mom and spending quality time for our Mother's Day weekend.
Makes me think of past ways we celebrated, and which might be my most memorable. Oh it has to be the time we took all our dogs to the dog park and had a picnic. How well behaved they all were, and how proud we were of our "kids" as they romped with the others in the park. Since they were my only grandchildren at that time, it was so special for all of us.
Also makes me cherish memories of spending the day with my sister, as her birthday often fell on Mother's Day - oh how we would laugh and find something special to do to mark the occasion.
So no matter who you spend the day with, we can make a precious memory just by being together.
Have a wonderful weekend!
Friday, May 1, 2015
A new type of treatment starring today! Hooray?
The best part about starting my new taxol treatments is that I am that much closer to August when I will be done with chemo and on my way to radiation therapy. Now I know that doesn't sound great, but to me the forward progress is noteworthy. The doctors told me upon diagnosis that it would be a year or more before "normal" life can resume, and I know it is true, now.
Living in my life these days makes me marvel at our wonderful ability to adapt to our current situations, whatever they may be. Sometimes we adapt because of good things too- the birth of a child, the start of a class, a marriage. Life changing events are just that, life changing. Depending on how you respond can make a huge difference in the way others respond too. So with this "event" of mine, I am choosing to pass my time pleasantly, with a look to my future normal in mind, knowing that my responses effect others in my life. I try to share my experience with others, so that if they are ever have to deal with this type of change, they might also present a positive outlook. We all have to change sometimes, and no matter the outcome, we grow stronger from the experience.
We are all amazing !
Thursday, April 16, 2015
What is Normal
Funny how these days it feels so special when I get to do normal things. After my surgery, feeling normal again was lifting my hands overhead and blessedly being able to sleep on my stomach if I wanted to. With these chemo treatments, normal is my week after, when I don't have to keep taking anti-nausea meds, steroids and shots, and start to have more energy to do normal things again.
Yesterday I got to go with my friends from work to a painting class, played some puttputt golf and had some laughs over dinner. What a rejuvenating day!
I had not thought about how the semi isolation from things had really been something so different in my life. I mean I don't do all that much, but it was more than these days! Most activities are best enjoyed in the company of good friends. I do enjoy sewing, gardening, and paper crafting by myself most of the time, but realize I love to take classes and share my passions with others, too. So I think I will add some classes to attend in my near future. With the usually smaller groups of people. I can still maintain my mostly anti germ, bubble like existence and sprinkle some rewarding, rejuvenating events to help the treatment regiment time pass more quickly.
So while I wait for the nurses to "hook me up" today, I will wish you all some happy times with good friends!
Wednesday, April 8, 2015
Waiting to feel better
Today I am waiting with my mama to see a Dr for her cough. I am so glad I took the extra precautions to mask up for our trip. Many people waiting, small space, not a great combination! With my immune system compromised from chemo, I have to do everything I can when I can't control my immediate area. I'm not antisocial, just more anti-germ than normal.
So as I wait for her to be seen, I think about how important it is for Everyone to remember not to "share" when they are sick, sniffly, or just under the weather feeling. Hard as it is to stay home, it shows respect to others to do so! Lets make it more OK not to join a celebration or go in to work when we are not at our best. And I can't tell You enough to wash your hands, block the cough, use hand sanitiZer! We never know how a germ will effect someone who may already have less to fight with. I can't wait for my body to be strong again!
So as I wait for her to be seen, I think about how important it is for Everyone to remember not to "share" when they are sick, sniffly, or just under the weather feeling. Hard as it is to stay home, it shows respect to others to do so! Lets make it more OK not to join a celebration or go in to work when we are not at our best. And I can't tell You enough to wash your hands, block the cough, use hand sanitiZer! We never know how a germ will effect someone who may already have less to fight with. I can't wait for my body to be strong again!
Saturday, April 4, 2015
Greeting the day
Well I am once again the first one up at my house, and I so enjoy the peace and quiet. As I let the dog out, I notice the tulips are announcing the day with brilliant hues of red, yellow and purples. What a lovely greeting for Easter!
We made our Easter ham dinner last night as Peter will be working later shifts today and tomorrow, so he can take his delicious leftovers and celebrate a couple more times. I'm not able to attend the church services this year but will see if I can at least have some time with family, even if it is next weekend. Our tradition is to have a get together and take our annual Easter pics, but this year we don't have a plan in place, yet- kinda snuck up on us! We are great at last minute coordination so it will all work out as it is supposed to. It is our time together that we record and our scrapbooked memories will easily be recorded no matter the day of our gathering!
Speaking of scrap booking, I printed out a bunch of pics yesterday's so I'm going to hop over to craftwithanna.com to get some ides for some cute layouts! Talk to you again soon!
Happy Easter !
Thursday, April 2, 2015
Change is great!
What an exciting day! My final expansion, my 3rd treatment of this cycle of chemo, and a sunny, crisp spring day outside. Moving forward has always been invigorating to me, and this year I anticipate the end of this latest adventure eagerly. By this time next year I plan to be celebrating with a real cruise, on a Ship!
I had a few minutes to read a magazine article this morning that talked about embracing change. It helped me remember that if we didn't have unexpected challenges, we may never experience the joys of success. Through our losses we often gain a new appreciation for the things and people we have in our life now. When my hair fell out it was devastating, but I learned that my mom and other people looked for my smile to recognize me, and my hair no longer mattered as much. I've now learned to tie scarves, and how to best support others who travel this path I'm on.
I've learned to allow/encourage others to help me, as my friends and family have a need to demonstrate their support, which enables them to deal with my illness. Plus it makes our time together special to us both. It is hard to be humble, but I am learning that it is ok for someone else to do the dishes once in awhile, and if the clothes aren't folded exactly how I do it, I can refold them or embrace the change!
Thank you again Anna, for reorganizing my craft space to a wonderfully inviting studio for recording memories! Thank you Becca for sharing "game time" with me, and thank you my friends and family for following along on this blog and sending me positive thoughts and prayers. It means a lot to me to know I have you all supporting me!
So next time Life throws you a curve ball, mourn as needed, and happily move forward.
Each day is a new opportunity to change!
Sunday, March 29, 2015
While I wait for my friend to visit again
Wow a lot has been going on and as I learn more about how my body responds to all of the uproar that is chemo, I am thankful for my friends and family. My mom generally stays on Friday nights and we do our grocery shopping and cooking / food prep and occasionally get to do something fun. This week Friday was hard on my body, and my dear mom took all my comments and frustration in stride. In other words I wasn't so much fun. She is making things so much easier during my inconvenient recovery delays. Hard to believe there is anything that can take this kind of toll on the body. And the worst is that it can be something I eat, forgetting a part of my medication routine, or just overdoing things that can cause me to have to have a little time out. Once the bland eating, rest induced routine is reestablished, I feel better- So boring!
On another note, my silly husband has shaved his head in my honor! Yes after some teary time, I am done with the hair loss and my husband and I should be sporting some very short cuts this fall for our 10th anniversary! Well That will make it special, as will the fact that we can be together thanks to the miracles of science. It is so amazing all the modern miracles that still occur in the cancer world- I mean the survival statistics are impressive with the types of treatments/medicines/surgeries that continue to keep me looking forward to the future.
I'm so glad I had a chance to get you caught up on some of my thoughts, and thank you for reading this and following along.
I'll have another treatment on Thursday so I'll talk to you later!
On another note, my silly husband has shaved his head in my honor! Yes after some teary time, I am done with the hair loss and my husband and I should be sporting some very short cuts this fall for our 10th anniversary! Well That will make it special, as will the fact that we can be together thanks to the miracles of science. It is so amazing all the modern miracles that still occur in the cancer world- I mean the survival statistics are impressive with the types of treatments/medicines/surgeries that continue to keep me looking forward to the future.
I'm so glad I had a chance to get you caught up on some of my thoughts, and thank you for reading this and following along.
I'll have another treatment on Thursday so I'll talk to you later!
Thursday, March 19, 2015
Cruising on my Happy Ship
Today I woke up in the loving arms of my husband Peter, for which I cannot express my level of gratitude. He continues to be wonderfully supportive as I go through all of the ups and downs that are involved in my treatment cycles. I am amazed at how well he anticipates when I need just a little more attention or a kind gesture, and provides more than I could ask. Thank you honey !
Today I have another treatment that I have for some reason been sort extra anxious about. So as I wait for them to call me I started to wonder- Why can't I sleep late, even on days off (groan)? My mind starts at about 5:30 every day, and though usually it is filled with organizing my day, mentally selecting my attire, etc., lately it seems to have been geared towards woe -is me-like thoughts- oh I'm Not listening to that in my head! Instead, I get up and take the dog out and greet the day ! Much better! Funny how the morning light can give one a fresh perspective on the day, and I'm learning that a bit of exercise ( thank you Rex) can shift my mood into one of enthusiasm and a can-do attitude!
I talked with a super sweet lady in the waiting room, just now. I struck up a conversation with her after complimenting her on the vibrancy of her tank top. I'm in the oncology department so we all have that in common here. She had such a warmth to her and turned out our parents were similar ages, shared some "stuff" about our types and stages and give each other a bit of umpfh to make it through our treatments! How rewarding to remember to share a kind word or two with someone else. How nice to make a new friend who is in the same boat- and this ain't no cruise ship! And yet, like when we travel we meet people and carry on sometimes meaningful conversations, it is a bit like a cruise ship. I wait to board the ship, am greeted by wonderfully enthusiastic people, am offered a selection of amenities to make my stay pleasant, "fed" more than I care to consume, and sent home with a few trinkets, and some memories! Oh I'm gonna do a selfie! Cause we gotta!
Whew, High on life now that I've written to all of you! Thanks for stopping by to listen, and Next time you are feeling anxious or a little down, I hope you hop on board my happy ship, and gain a new perspective for the day!
Whew, High on life now that I've written to all of you! Thanks for stopping by to listen, and Next time you are feeling anxious or a little down, I hope you hop on board my happy ship, and gain a new perspective for the day!)? My mind starts at about 5:30 every day, and though usually it is filled with organizing my day, mentally selecting my attire, etc., lately it seems to have been geared towards woe -is me-like thoughts- oh I'm Not listening to that in my head! Instead, I get up and take the dog out and greet the day ! Much better! Funny how the morning light can give one a fresh perspective on the day, and I'm learning that a bit of exercise ( thank you Rex) can shift my mood into one of enthusiasm and a can-do attitude!
I talked with a super sweet lady in the waiting room, just now. I struck up a conversation with her after complimenting her on the vibrancy of her tank top. I'm in the oncology department so we all have that in common here. She had such a warmth to her and turned out our parents were similar ages, shared some "stuff" about our types and stages and have each other a bit of umpfh to make it through our treatments! How rewarding to remember to share a kind word or two with someone else. How nice to make a new friend who is in the same boat- and this ain't no cruise ship! And yet, like when we travel we meet people and carry on sometimes meaningful conversations, it is a bit like a cruise ship. I wait to board the ship, am greeted by wonderfully enthusiastic people, am offered a selection of amenities to make my stay pleasant, "fed" more than I care to consume, and sent home with a few trinkets, and some memories! Oh I'm gonna do a selfie! Cause we gotta!
Whew, High on life now that I've written to all of you! Thanks for stopping by to listen, and Next time you are feeling anxious or a little down, I hope you hop on board my happy ship, and gain a new perspective for the day!
Today I have another treatment that I have for some reason been sort extra anxious about. So as I wait for them to call me I started to wonder- Why can't I sleep late, even on days off (groan)? My mind starts at about 5:30 every day, and though usually it is filled with organizing my day, mentally selecting my attire, etc., lately it seems to have been geared towards woe -is me-like thoughts- oh I'm Not listening to that in my head! Instead, I get up and take the dog out and greet the day ! Much better! Funny how the morning light can give one a fresh perspective on the day, and I'm learning that a bit of exercise ( thank you Rex) can shift my mood into one of enthusiasm and a can-do attitude!
I talked with a super sweet lady in the waiting room, just now. I struck up a conversation with her after complimenting her on the vibrancy of her tank top. I'm in the oncology department so we all have that in common here. She had such a warmth to her and turned out our parents were similar ages, shared some "stuff" about our types and stages and give each other a bit of umpfh to make it through our treatments! How rewarding to remember to share a kind word or two with someone else. How nice to make a new friend who is in the same boat- and this ain't no cruise ship! And yet, like when we travel we meet people and carry on sometimes meaningful conversations, it is a bit like a cruise ship. I wait to board the ship, am greeted by wonderfully enthusiastic people, am offered a selection of amenities to make my stay pleasant, "fed" more than I care to consume, and sent home with a few trinkets, and some memories! Oh I'm gonna do a selfie! Cause we gotta!
Whew, High on life now that I've written to all of you! Thanks for stopping by to listen, and Next time you are feeling anxious or a little down, I hope you hop on board my happy ship, and gain a new perspective for the day!
Whew, High on life now that I've written to all of you! Thanks for stopping by to listen, and Next time you are feeling anxious or a little down, I hope you hop on board my happy ship, and gain a new perspective for the day!)? My mind starts at about 5:30 every day, and though usually it is filled with organizing my day, mentally selecting my attire, etc., lately it seems to have been geared towards woe -is me-like thoughts- oh I'm Not listening to that in my head! Instead, I get up and take the dog out and greet the day ! Much better! Funny how the morning light can give one a fresh perspective on the day, and I'm learning that a bit of exercise ( thank you Rex) can shift my mood into one of enthusiasm and a can-do attitude!
I talked with a super sweet lady in the waiting room, just now. I struck up a conversation with her after complimenting her on the vibrancy of her tank top. I'm in the oncology department so we all have that in common here. She had such a warmth to her and turned out our parents were similar ages, shared some "stuff" about our types and stages and have each other a bit of umpfh to make it through our treatments! How rewarding to remember to share a kind word or two with someone else. How nice to make a new friend who is in the same boat- and this ain't no cruise ship! And yet, like when we travel we meet people and carry on sometimes meaningful conversations, it is a bit like a cruise ship. I wait to board the ship, am greeted by wonderfully enthusiastic people, am offered a selection of amenities to make my stay pleasant, "fed" more than I care to consume, and sent home with a few trinkets, and some memories! Oh I'm gonna do a selfie! Cause we gotta!
Whew, High on life now that I've written to all of you! Thanks for stopping by to listen, and Next time you are feeling anxious or a little down, I hope you hop on board my happy ship, and gain a new perspective for the day!
Sunday, March 15, 2015
Sunday thoughts
My thoughts this week seem to be circling around my upcoming 2nd chemotherapy treatment. The anticipation of a visit with the oncologist, the next round of all those anti-nausea pills, the white cell boosting shots, the waiting time in the pharmacy, all give me opportunities to plan my attitude for these uncontrollable events. The waiting IS the hardest part, so I am choosing to accept the situation again, and make the best of it. I will have some time for blogging!
I have planned a few things to talk about with the oncologist; a couple of questions to ask to help me understand how this process progresses, and if there is anything I can/should do to improve it. I also plan to give compliments on the regiment that has, for the most part, worked well for me, and perhaps offer some tips that may make it easier for the next person. The people that have taken care of me are very nurturing individuals, which makes a huge difference in this situation. Kudos to my care team!
Thanks for helping me gain a new perspective for the start of my week - just knowing I have all of you reading this to support me is something I count as a Sunday blessing.
I have planned a few things to talk about with the oncologist; a couple of questions to ask to help me understand how this process progresses, and if there is anything I can/should do to improve it. I also plan to give compliments on the regiment that has, for the most part, worked well for me, and perhaps offer some tips that may make it easier for the next person. The people that have taken care of me are very nurturing individuals, which makes a huge difference in this situation. Kudos to my care team!
Thanks for helping me gain a new perspective for the start of my week - just knowing I have all of you reading this to support me is something I count as a Sunday blessing.
Saturday, March 7, 2015
Think about someone in your life that gives you that strength, and thank them in some way.
Thursday, March 5, 2015
What we need when we need it
Such a nice presentation from the nurse which included a video about chemotherapy and all the anti nausea drugs and how the chemo drugs work to eliminate all cells that are dividing, and how the cancer cells divide rapidly . I thought it was a pretty good introduction and with the knowledge I had from looking up lots of new words online, I had some comfort. From that knowledge, I could understand how a less detailed, lessI gotta know the better, less what is this and what are my options, and less of a what is the medication I'm taking kind of person , would also know enough about the treatment plan, and be more comfortable signing the consent forms.
The nurse was excellent at explaining the greater detail that I needed, listening carefully, and giving thorough answers to me. I was reminded of stay away from germs, period, and to instill super clean regiments in hygiene and also with foods. She had an information folder with reminders of the things we discussed and also lists of cancer connections in my area. I want to check out FREE wigs, scarves, caps, etc, too. Handy! And what a great place to donate to when my treatment time is over, though secretly I may just like getting up and grabbing a hairdo or a cute hat, and heading out the door!
So, I had my treatment, just like it was described, and I even learned that I Can give myself a shot when it comes right down to necessity. Oh and That's what the Cather looks like, and why that area is tender. And yes after the treatment, I did pee red- just like they said I would-good hing I drank about a gallon of water today- before, during and after treatment as it is very dehydrating- like most powerful drugs, it seems.
Water, water, water! I like it!
Sometimes life changing events help us identify what we Thought was important and learn a different way. In reality, we have what we need, when we need it. I am fortunate that I know some wonderful people, and I meet more every day!
Thanks for stopping by to learn a little bit more about my journey, and for putting a smile on my face today! I hope I just put one on your face too!
The nurse was excellent at explaining the greater detail that I needed, listening carefully, and giving thorough answers to me. I was reminded of stay away from germs, period, and to instill super clean regiments in hygiene and also with foods. She had an information folder with reminders of the things we discussed and also lists of cancer connections in my area. I want to check out FREE wigs, scarves, caps, etc, too. Handy! And what a great place to donate to when my treatment time is over, though secretly I may just like getting up and grabbing a hairdo or a cute hat, and heading out the door!
So, I had my treatment, just like it was described, and I even learned that I Can give myself a shot when it comes right down to necessity. Oh and That's what the Cather looks like, and why that area is tender. And yes after the treatment, I did pee red- just like they said I would-good hing I drank about a gallon of water today- before, during and after treatment as it is very dehydrating- like most powerful drugs, it seems.
Water, water, water! I like it!
Sometimes life changing events help us identify what we Thought was important and learn a different way. In reality, we have what we need, when we need it. I am fortunate that I know some wonderful people, and I meet more every day!
Thanks for stopping by to learn a little bit more about my journey, and for putting a smile on my face today! I hope I just put one on your face too!
Exciting isn't it!
Today I am waiting for my first chemo treatment! So exciting, Not! I can think of a few other emotions that I am experiencing , but excitement, hmmm......... Well yes! I'm excited to get this show on the road, excited to be moving forward, and even excited for my new summertime look, hair free legs without electrolysis!
It's true that an attitude of looking for the good can make thing much easier to bear. And with some enthusiasm for each treatment, I may even be able to make some other person's day easier, more fun. Wheeeeee I just know they'll be calling my name any minute!
It's true that an attitude of looking for the good can make thing much easier to bear. And with some enthusiasm for each treatment, I may even be able to make some other person's day easier, more fun. Wheeeeee I just know they'll be calling my name any minute!
Tuesday, March 3, 2015
Planning for surgery
The oncologist put the brakes on because when the lymph nodes are involved, there could be other cancer nearby. Yep, more tests including a CT scan and a bone scan to see if it has traveled from somewhere else to the breast, or from the breast using the lymphatic system to spread. In the meantime an initial consult with the oncologist and another with a plastic surgeon for reconstruction at the time the mastectomy is performed. So while I waited for appointment and test results, I was also planning for this now bigger procedure/surgery.
Good news, finally, that no other cancer/ suspicious spots found , so I can schedule the surgery, almost a month later. How could I help but wonder if while I wait the cancer could be spreading? Hoping not, and wanting time to pass, to get things moving. And at the same time trying to have as much "normal" as possible before that surgery date, while finalizing details to miss work, etc.
During that month I tried to exercise a Lot, to alleviate stress, and also to strengthen while I could some muscles that would soon be out of commission- I think we underestimate the overall value of exercise to clear our minds !
Good news, finally, that no other cancer/ suspicious spots found , so I can schedule the surgery, almost a month later. How could I help but wonder if while I wait the cancer could be spreading? Hoping not, and wanting time to pass, to get things moving. And at the same time trying to have as much "normal" as possible before that surgery date, while finalizing details to miss work, etc.
During that month I tried to exercise a Lot, to alleviate stress, and also to strengthen while I could some muscles that would soon be out of commission- I think we underestimate the overall value of exercise to clear our minds !
How to say Cancer
That big C word is in a class by itself, and each person has their own scary reaction to it. The initial reaction to my breast cancer diagnosis was especially devastating. I was shocked because my sister-in-law had been diagnosed a couple years ago It has been a rough ride for her, and all of us who love her, and now I had to wonder what my fate would be.
I was invited to discuss with the surgeon, all of the possible procedures, lumpectomy, mastectomy, and the reasons for each, and details of each procedure, etc. I will say that he was very thorough in his explanations, came across as a warm person who seemed to understand, and made me feel heard by answering all of my many questions. I hoped it was just the one spot and made plans with the surgeon for a lumpectomy followed by a round of radiation- side effect a less than perfect breast, but not too terribly inconvenient, good thing they found it early, etc. And, let's get it out Now!
He also suggested a bit more testing, an MRI to make sure of the precise location and to make sure there was only the one spot to remove. Good safety, I thought, very thorough and a great idea to have a better view to confirm the details. An appointment was scheduled and I waited.
With the holidays near, I was able to quickly schedule the MRI and I set up the surgery for December 23, because I want this over and Out. All during this time, I wondered how to tell my family, let alone friends that I have breast cancer, and don't really know much more. There is NO good time to do that, and because of all the good events happening, like thanksgiving, holiday parties, birthdays, you know- happy things, I had a harder time bringing up the topic- I mean there is No good time, and no easy way for anyone to share that news. Meanwhile I also had to think how to tell my mom that I'm probably not going to be helping out on Christmas Eve, and how do I start that conversation? Oh the turmoil I experienced, and most of all, how to tell my husband, because I hadn't let him know either. I just wanted it to be over and done and keep things normal with cancer as my own private thing. How could I explain that I don't wish to share this info really with anyone, because I don't really know anything? And how can I say that nicely without having the whole cancer conversation? Each person has a different experience with this disease, and mine is not exactly like your Whoever!
(Deep breath..... And exhale)
I had those emotional conversations, dealt with everyone's reactions and gained the much needed support from family that I had been lacking. I also gathered as much information as I could from the internet. Knowledge is power!
So I now waited for the MRI appointment, then waited for the results. And all along I had this sort of secret appointment for Dec 23rd. A couple more spots found in the breast with the MRI and that sentinel lymph node looked suspicious, I was scheduled to biopsy all those and see if they too were invasive carcinoma. The women who were involved in both biopsy procedures were amazing, offered compassion and they were great, caring individuals who did everything they could to ease my burden. They gave me some secret strength to move me forward in the process. I waited another few days after the biopsy for the results.
Test results came back and the surgeon called me at home on the 22nd to tell me that the other tested spots in the breast were also cancer, but smaller. And the complication was that at least one lymph node was involved as it also came back as cancer. The new recommendation was a mastectomy with removal of the lymph nodes in the area where the tested one was located. Sounds appalling, but remember there is not much choice, and we had a thorough discussion about the whole process, including the ability to wait and have reconstruction at the same time. He also wanted me to consult with an oncologist to determine the new plan. Great, another wait, and that surgery date cancelled.
That big C word is in a class by itself, and each person has their own scary reaction to it. The initial reaction to my breast cancer diagnosis was especially devastating. I was shocked because my sister-in-law had been diagnosed a couple years ago It has been a rough ride for her, and all of us who love her, and now I had to wonder what my fate would be.
I was invited to discuss with the surgeon, all of the possible procedures, lumpectomy, mastectomy, and the reasons for each, and details of each procedure, etc. I will say that he was very thorough in his explanations, came across as a warm person who seemed to understand, and made me feel heard by answering all of my many questions. I hoped it was just the one spot and made plans with the surgeon for a lumpectomy followed by a round of radiation- side effect a less than perfect breast, but not too terribly inconvenient, good thing they found it early, etc. And, let's get it out Now!
He also suggested a bit more testing, an MRI to make sure of the precise location and to make sure there was only the one spot to remove. Good safety, I thought, very thorough and a great idea to have a better view to confirm the details. An appointment was scheduled and I waited.
With the holidays near, I was able to quickly schedule the MRI and I set up the surgery for December 23, because I want this over and Out. All during this time, I wondered how to tell my family, let alone friends that I have breast cancer, and don't really know much more. There is NO good time to do that, and because of all the good events happening, like thanksgiving, holiday parties, birthdays, you know- happy things, I had a harder time bringing up the topic- I mean there is No good time, and no easy way for anyone to share that news. Meanwhile I also had to think how to tell my mom that I'm probably not going to be helping out on Christmas Eve, and how do I start that conversation? Oh the turmoil I experienced, and most of all, how to tell my husband, because I hadn't let him know either. I just wanted it to be over and done and keep things normal with cancer as my own private thing. How could I explain that I don't wish to share this info really with anyone, because I don't really know anything? And how can I say that nicely without having the whole cancer conversation? Each person has a different experience with this disease, and mine is not exactly like your Whoever!
(Deep breath..... And exhale)
I had those emotional conversations, dealt with everyone's reactions and gained the much needed support from family that I had been lacking. I also gathered as much information as I could from the internet. Knowledge is power!
So I now waited for the MRI appointment, then waited for the results. And all along I had this sort of secret appointment for Dec 23rd. A couple more spots found in the breast with the MRI and that sentinel lymph node looked suspicious, I was scheduled to biopsy all those and see if they too were invasive carcinoma. The women who were involved in both biopsy procedures were amazing, offered compassion and they were great, caring individuals who did everything they could to ease my burden. They gave me some secret strength to move me forward in the process. I waited another few days after the biopsy for the results.
Test results came back and the surgeon called me at home on the 22nd to tell me that the other tested spots in the breast were also cancer, but smaller. And the complication was that at least one lymph node was involved as it also came back as cancer. The new recommendation was a mastectomy with removal of the lymph nodes in the area where the tested one was located. Sounds appalling, but remember there is not much choice, and we had a thorough discussion about the whole process, including the ability to wait and have reconstruction at the same time. He also wanted me to consult with an oncologist to determine the new plan. Great, another wait, and that surgery date cancelled.
Monday, March 2, 2015
Insert Hug Here
Today while I waited to have my cathetor placed/inserted in a vein near my heart in preparation for my chemotherapy. I had good conversation with the nurse who prepared me for the surgery, entered her "paperwork " , and brought me the wonderful warm blankets. She was feeling impatient as there was a lab result lagging. I reminded her to take a deep breath, cause everything would be alright. Some impatiently lIght venting and a call back from the lab that the results were available.
Off we went to the operating room. I felt a bit apprehensive about my expanders, but Not so much abou the port. A quick conversation about location and agreement determined and I'm ready for a nap! Huh, only a mild sedative? Local anesthetic initiated, pressure applied, a deep breath to Hold, another pressure applied( like are ya trying to crack my chest) and a plastic covering applied to the site. All that action and I am awake having conversation that I was told I may not remember, super nice nurse that provided "happy place" conversation about old bands and teenage icons. All while taking care of me through the procedure. The operating room nurse shared a "preview" of my reconstruction as she was also a member of the BCMR (breast cancer, mastectomy, reconstruction) survivor list. And on the way out of the operating room the primary nurse was smiling and happy to report that she was back on schedule ! She wheeled me to a recovery spot to redress , with my caring husband there to greet me.
As I was leaving I just had to give her a hug!
I also took time to thank her for making this part of my journey pleasant.
Did someone make your day easier? I'd love to hear about it!
Off we went to the operating room. I felt a bit apprehensive about my expanders, but Not so much abou the port. A quick conversation about location and agreement determined and I'm ready for a nap! Huh, only a mild sedative? Local anesthetic initiated, pressure applied, a deep breath to Hold, another pressure applied( like are ya trying to crack my chest) and a plastic covering applied to the site. All that action and I am awake having conversation that I was told I may not remember, super nice nurse that provided "happy place" conversation about old bands and teenage icons. All while taking care of me through the procedure. The operating room nurse shared a "preview" of my reconstruction as she was also a member of the BCMR (breast cancer, mastectomy, reconstruction) survivor list. And on the way out of the operating room the primary nurse was smiling and happy to report that she was back on schedule ! She wheeled me to a recovery spot to redress , with my caring husband there to greet me.
As I was leaving I just had to give her a hug!
I also took time to thank her for making this part of my journey pleasant.
Did someone make your day easier? I'd love to hear about it!
Coffee together
This morning my word is coffee! I had a few minutes to wait for the coffee to brew early this morning, and now I am waiting for someone to enter my name, etc into the St Joseph computer system. In our age of technology, one might assume the "systems" housed in the same building would" talk" to one another. But then again I have neighbors whom I have not connected with either. So as I wait, I am thinking of how this blog may help me to connect with those around me, in some way to share a bit of me with you. Maybe you will feel comfortable here too, and leave a note about you. Let's have coffee!
Little things we do for another
My word for yesterday was helpful. I had shopped in Joann's and was using my coupons at the register when the sales associate suggests I may have additional coupons to use, reminding me of other vendors that regularly send via txt or email, allowing me to save even more on my purchase. Very Helpful! Then she pointed out the survey at the bottom of the receipt, for an additional 50% off coupon- wow! I nearly floated to the car with the uplifting feeling and generous gratitude that I hope I expressed to her. I hope I can bring a bit of that feeling to you as I have just had another dose by talking about it!
Saturday, February 28, 2015
What this Blog is About
This idea started with a conversation, albeit a txting conversation,
that I had with a friend while I waited for a prescription to be
re-filled. I thought of my friend because the last time I had waited
there, we had the most wonderful conversation, really getting to know each other. I wanted to make sure
I touched base with her again. From that conversation, we were able to
renew thoughts for each other, and also to give each other strength and
encouragement.
Alas, While We Wait 4 It , the blog idea was born.
We decided this can be a place for us to share a word, (maybe more than one word) to comment about our day, event, idea, dream, or hope, or just someplace to journal an adventure or what's happening in our lives. When we share our thoughts, struggles and successes with others, we are connecting to our world. By giving to one another we are 'sharing the love' or connecting like a great big hug, either to ourselves or those who are reading our words.
So often we have time spent having to wait in line, or waiting for another person, or at an appointment, but other times I think we wait for someone to believe in us, to give us a little extra motivation, in order to take action.
So my friend, next time you are waiting, I invite you to add a word!
Alas, While We Wait 4 It , the blog idea was born.
We decided this can be a place for us to share a word, (maybe more than one word) to comment about our day, event, idea, dream, or hope, or just someplace to journal an adventure or what's happening in our lives. When we share our thoughts, struggles and successes with others, we are connecting to our world. By giving to one another we are 'sharing the love' or connecting like a great big hug, either to ourselves or those who are reading our words.
So often we have time spent having to wait in line, or waiting for another person, or at an appointment, but other times I think we wait for someone to believe in us, to give us a little extra motivation, in order to take action.
So my friend, next time you are waiting, I invite you to add a word!
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